Today was a long, slow day. Hayes stayed pretty much the same but his mucus is still really forming and sticking in his lungs. They are still doing breathing treatments every 4 hours and now have started using a cup-like utensil to pat him on the back with to try to loosen the secretions. He is down to a 1/2 liter of oxygen from 1 liter so that's good. They are going to try to slowly wean him from the oxygen. They tried turning it off today and while he did okay he wasn't where they wanted him to be. So tonight he is back on it. They did take out the IV for right now since he is eating so well. It's nice to have one less cord to deal with when picking him up or trying to feed him. When we saw the doctor today she said the same thing they have all told us...we just have to wait while his body heals itself. Hayes just isn't healing as fast as some kids do. They said obviously it varies from child to child. He and I had a long night last night. He is coughing a lot now so its hard for him to stay asleep for long. They also decided to take another chest x-ray to make sure its only the RSV that's causing all the problems. We haven't heard anything about that. I never dreamed we would still be here.
The funeral for Nanny is going to be on Saturday at 2 in Huntsville. It looks like we will definitely still be in the hospital so only Lee will be able to go. I have tried to find ways that I could go but none of them seem feasible. It breaks my heart that I can't be there with the rest of the family. I know this is one of those times I have to do what is best for my child but it doesn't make it any easier. I am to the point where I'm tired of just sitting, cabin fever is setting in.
6 comments:
Kristy and Lee, I am so sorry to hear about tough times your family is going through. I know you have a lot prayers and hopeful thoughts coming your way, including from me. Hang in there.
--Laura
Kristy and Lee, My prayers are with you and your family.
Oh Kristy, It breaks my heart to read your blog. We all know you want to be in Huntsville this week and understand why you can't. Nanny would want you there taking care of your family. Your boys meant so much to her. Our prayers are with Hayes and you during this time. - Amanda Gallagher
Im sorry you cant be there at Nanny's funeral. I wish there was something I could do to help you out. We will be praying for all of you. Give Hayes & Price kisses from us.
i am so, so sorry for all you guys are going through right now. i know how scary it is to have a newborn in the hospital with lung troubles, it's AWFUL and especially with 1 at home who needs you too!! i am praying for you all, sister!! XOXO
Kristy- I am heartbroken for you and all that you and your family are dealing with. I know there are not even words that can comfort right now, so I will just continue to pray for you and your family. Even though we have not spoken in years, I still care much about you and your family. I know God is watching over each of you and Hayes will be home very soon. I am sorry for the loss of your Nanny, but Hayes and your family now just has another angel watching over y'all.
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